My mom refused was to believe I had DIPG because it’s a terminal brain cancer found in kids 6-10 years old. And I’m 18!!! So she ordered the neurosurgeon to perform a biopsy on 3/4/19.
3/6/19 my DIPG was officially diagnosed. 💔 By the time I was discharged from Children’s Hospital the tumor sitting on my brain stem has applied pressure to nerves that affect my balance, and the right side of my face.
not feel the right side of my face. I went to the bathroom and saw that the right side of my face was paralyzed. That afternoon I showed my mom my face and we both agreed this has to be a simple case of bells pausy and we would go
have it confirmed in the ER. We arrived and was rushed to the back, I went though a lot of neurological test before
getting a ct scan. Less than 30 mins later I was told I had a “mass” in my brain. However I was transported to WHC because I am 18. I received an MRI there and was told my mass was DIPG a childhood illness and sent back to children’s where I was admitted at 5am to the PICU.
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I was diagnosed with a brain cancer called DIPG, in March of 2019.
My symptoms were pretty mild: